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| BRIEF COMMUNICATION |
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| Year : 2021 | Volume
: 7
| Issue : 2 | Page : 175-177 |
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Annual report of the Indian Heart and Lung Transplant Registry
Indian Society of Heart and Lung Transplantation (INSHLT)
| Date of Submission | 25-May-2021 |
| Date of Decision | 29-May-2021 |
| Date of Acceptance | 01-Jul-2021 |
| Date of Web Publication | 31-Aug-2021 |
Correspondence Address:
Indian Society of Heart and Lung Transplantation (INSHLT)
 Source of Support: None, Conflict of Interest: None  | Check |
DOI: 10.4103/jpcs.jpcs_34_21
The Indian Society of Heart and Lung Transplantation started building up a cloud-based registry of heart and lung transplantation from 2018 to 2019. As a first step, the hospitals involved in these procedures were enrolled in a Cloud-based Google Sheet Registry. Data have been updated till April 2021. This brief communication is the first publication from this registry and lists the 72 hospitals which participated in this voluntary registry. Starting in 1994 at AIIMS New Delhi, India as of now has completed 1113 heart transplants, 101 heart lung transplants, 338 lung transplants, and implanted 124 left ventricular assist devices.
Keywords: Heart, India, Indian Society of Heart and Lung Transplantation, lung, registry, transplant
How to cite this article:
. Annual report of the Indian Heart and Lung Transplant Registry. J Pract Cardiovasc Sci 2021;7:175-7 |
| Introduction | |  |
Transplant registries provide data, analysis, and information regarding transplants to health-care community and the public and are critical for quality control of medical care. In India, data on solid organ transplants, especially heart and lung transplants, are limited and based on individual series from different hospitals. To circumvent this problem, the Indian Society of Heart and Lung Transplantation started building up a cloud-based registry of heart and lung transplantation from 2018 to 2019.
| Methodology | | |
As a first step, the hospitals involved in these procedures were enrolled in a Cloud-based Google Sheet Registry. Data were updated till May 2021. The data involve transplants done at each hospital and attempts have been made to remove duplicate data where the surgeon has moved from one hospital to another. The data are based totally on the individual entries made by one nodal person from each hospital (either surgeon or cardiologist). No verification has been done of individual patients. No outcome data or treatment data have been collected.
| Results | | |
This brief communication is the first publication from this registry and lists the 72 hospitals which participated in this registry. Starting in 1994 at AIIMS New Delhi, India as of now has completed 1113 heart transplants, 101 heart lung transplants, 338 lung transplants, and implanted 124 left ventricular assist devices.
[Table 1] lists the hospitals which have participated in this registry.
[Table 2] gives the total number of procedures done as of April 2021. | Table 2: Data of thoracic transplants/assist devices in India (August 1994-April 2021)
Click here to view |
| Discussion | | |
Heart transplant in India was first done by Dr. PK Sen. The patients did not survive the transplants since transplant science was still in its infancy.[1],[2] The first successful heart transplant was done in India by Venugopal in 1994.[3] Now in 2021, India is doing heart, heart–lung, and lung transplants. We are also implanting ventricular assist devices which were first implanted in 1994–1995. The initial years of the heart and lung transplant program in India were slow, but now, the programs all over India are gradually picking up.
In the USA, there are more than 2000 transplants every year with a waitlist of over 4000 for a heart transplant. There are more than 6 million patients with heart failure in the USA.[4],[5] This means that about 0.07% of the patients with heart failure in the USA are probably sick enough to get onto the transplant list. In India, the estimated population of patients with heart failure are about 10 million, so transplant-requiring patients with end-stage heart failure are likely to be at least 7000 (0.07% of the 10 million patients with heart failure) who would qualify to be on the transplant list. This is of course an estimate based on US data, but even by these numbers, India has done just about 1044 transplants since the beginning of the program almost 27 years ago, still needs to go far.
The Indian transplant programs have adapted in a number of ways to the Indian settings with a reduced number of biopsies, modified regimes, and modified prophylactic programs and all this hopefully will be captured in the next registry report. Coronavirus disease (COVID) led to a reduction in the overall transplants, but now, the lung transplants for COVID intractable lung failure are picking up, and we hope to have some data on that soon.
Limitations
This is a purely voluntary registry and data are reflected as entered by the operating teams. There has been no attempt to verify any data. There could be duplication of data if teams have moved from one hospital to another, but all teams were told to enter data based on hospitals where they were operating and not based on individual surgeons or teams. The registry team also regrets if any errors in names of hospitals or numbers have crept in as these numbers and names have just been copied from the registry without any changes.
| Conclusion | | |
In this first registry data from Indian Society of Heart and Lung Transplantation, India has a robust heart, heart–lung, lung transplant, and ventricular assist device program. More data on other aspects of the transplant program will come up in subsequent reports.
Financial support and sponsorship
Nil.
Conflicts of interest
There are no conflicts of interest.
| References | | |
| 1. | Jones DS, Sivaramakrishnan K. Transplant Buccaneers: P.K. Sen and India's First Heart Transplant, February 1968. J Hist Med Allied Sci 2018;73:303-32.  |
| 2. | Kalra A, Seth S, Hote MP, Airan B. The story of heart transplantation: From cape town to cape comorin. J Prac Cardiovasc Sci 2016;2:120. |
| 3. | Venugopal P. The first successful heart transplant in India. Natl Med J India 1994;7:213-5. |
| 4. | Ponikowski P, Anker SD, AlHabib KF, Cowie MR, Force TL, Hu S, et al. Heart failure: Preventing disease and death worldwide. ESC Heart Fail 2014;1:4-25. |
| 5. | Colvin M, Smith JM, Hadley N, Skeans MA, Uccellini K, Goff R, et al. OPTN/SRTR 2018 annual data report: Heart. Am J Transplant 2020;20 Suppl s1:340-426. |
[Table 1], [Table 2]
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